An outlet to release my thoughts about life and Cystic Fibrosis....this is my Journey.

Wednesday, April 28, 2010

Cystic Fibrosis PSA shoot



Central Florida's TV27 News talked about the upcoming Great Strides Walks for Cystic Fibrosis. Taking steps to help make C.F. stand for Cure Found! For those that read this, if you're interested in finding a walk in your local area please go to: http://www.cff.org/great_strides

Monday, April 19, 2010

Team Jen 2010


On April 11th, 2010 my team and I went to the Great Strides Walk for Cystic Fibrosis in Orlando, Florida. Great Strides is a nationwide fund raising event held all over the United States in different locations. It was my third year coming out with my team at the UCF walk in Orlando and I was taken back by all the support from my friends, family, and even strangers that were there to help expand the quality of life for those with CF and find a cure. My team and I were able to raise $5,163 dollars in the fight to make CF stand for Cure Found and I could not have done it without the help of others. Words alone can not express how thankful and grateful I am to Team Jen, my friends, family, and even strangers for your support and donations.


New Lungs. New Peace!

I was so overjoyed when I heard the news that my friend Jessica had got a phone call for new lungs yesterday! She had been waiting for so long, I had been praying that her wish for new lungs would come true soon. She went in for surgery yesterday and her family has kept everyone posted on her blog. I was happy to hear that after 8 hours of surgery she was out and in ICU. That the goal for today was to take her off the vent and possibly get her breathing on her own. I'm still waiting to hear the amazing news that she is breathing on her own with healthy new lungs!

It's amazing that I have never met her face to face though have a huge Cyster bond with her made by facebook chatting, messages, phone calls, and texts. We met on facebook with the common bond of having Cystic Fibrosis and both being from Tampa and instantly became friends. She has become a really good friend of mine and it's all thanks to facebook hehe. We realized that we had most of the same doctors throughout our life and had gone through similar experiences. It's so interesting to be in the same area and have the same doctors though never cross paths. She is amazing and so strong. She is also a face of hope, that you can go through so much and come out so strong. Thank you Jess for being such an amazing inspiration and a great friend! I'm glad you "Kept Swimming." Here is to new beginnings and a quick recovery! New Lungs. New Peace. xox

My beautiful Cyster Jess before her lung transplant:


Aiden and I along with the rest of her breathe team are soooooo happy for her! Fight on girlie!